The EPICENTRE (EsPnIc Covid pEdiatric NeonaTal REgistry) is now active and dozens of centres around the world are participating
ESPNIC has launched an international registry on Paediatric and Neonatal SARS-CoV-2 infections called EPICENTRE (EsPnIc Covid pEdiatric NeonaTal REgistry). A detailed summary of the background and protocol for the international SARS-CoV-2 infections registry was just published in the European Journal of Pediatrics on behalf of ESPNIC and MCRI.
Please be aware that EPICENTRE is hosted in a server at the Murdoch Children Research Institute (MCRI) in Melbourne (Vic-Australia). Although the idea was thought to be originally based in Italy, it has been moved to improve logistics and to be truly international and not only European. Those that may have had access to the first Italian beta version should not consider it as it is no more active. Those who wants to participate should contact us at the following email: firstname.lastname@example.org
The MCRI ethical approval is available along with the final protocol and will be sent to those who want to participate together with initiation site documents. Each participating centre is responsible to seek additional local ethical or administrative approvals, if needed according to local regulations. A collaboration agreement will be signed and centres will be given permission to feed the database.
Everybody is welcome to join even if non-ESPNIC members yet and this may be a good occasion to join the Society as well.
EPICENTRE purpose is to collect clinical and physiopathological data on pаediatric/neonatal cases of COVID and on neonates born to mothers with SARS-VoV-2 infection and advance knowledge in the field. As we are in a rapidly evolutive situation, time is critical and we strive to have as much data as possible. All joining centers will be part of group authorship in future presentations and publications arising from EPICENTRE.
EPICENTRE is obviously totally anonymous and divided into two arms - Neonatal (cases diagnosed in the first 30d) and Paediatric (cases diagnosed beyond 30d). According to the preferences chosen, different fields will display to be filled. The Registry is based on the REDCap architecture hosted at the University of Melbourne (Australia). An Australian IRB approval as coordinating center will be available soon for those who need this to clear their local IRB formalities. Protocol and other details are also available for those who are interested and the project description is the object of an academic paper that will be hopefully published soon.
The Registry has also been modeled in order to be able to merge data with similar international registries being launched in other continents.
EPICENTRE has no sponsor and is being managed only thanks to the work of some ESPNIC members and Particularly A/Prof. David Tingay and Dr. Giovanna Chidini
For more info and to gain access please write to email@example.com
Vermont Oxford Network (VON) and the American Academy of Pediatrics Section on Neonatal-Perinatal Medicine (SONPM) have created a tool to help newborn care teams understand the impact of COVID-19 in their own units and more broadly in the neonatal community. The goal is to inform local and national decision-making for program evaluation and quality improvement.
The audit is open to all hospitals caring for infants regardless of VON membership. The audit will be conducted on a single day of your choice and you may choose to repeat the audit each month. Aggregate reporting will appear on the VON website.
ESPNIC is also collaborating with the PAN-COVID initiative which is the collaboration between the main pediatric/neonatal registries on the pandemics (https://pan-covid.org)