In March ESPNIC launched an international registry on Paediatric and Neonatal SARS-CoV-2 infections called EPICENTRE (EsPnIc Covid pEdiatric NeonaTal REgistry). Currently, more than 80 units have already joined the registry in order to exchange and benefit by the data collected.
EPICENTRE purpose is to collect clinical and physiopathological data on pаediatric/neonatal cases of COVID and on neonates born to mothers with SARS-VoV-2 infection and advance knowledge in the field. As we are in a rapidly evolutive situation, time is critical and we strive to have as much data as possible. All joining centers will be part of group authorship in future presentations and publications arising from EPICENTRE.
EPICENTRE is obviously totally anonymous and divided into two arms - Neonatal (cases diagnosed in the first 30d) and Paediatric (cases diagnosed beyond 30d). According to the preferences chosen, different fields will display to be filled. The Registry is based on the REDCap architecture hosted by Murdoch Children’s Research Institute, Melbourne, Australia and has already received an Australian IRB approval, available for those who may need it as per their local regulations.
The Registry has also been modeled in order to be able to merge data with similar international registries being launched in other continents.
EPICENTRE has no sponsor and is being managed only thanks to the work of some collaborators.
For more info and to gain access please write to firstname.lastname@example.org
Please see a detailed article published in the European Journal of Pediatrics summarizing the background and protocol for the international SARS-CoV-2 infections registry.
Vermont Oxford Network (VON) and the American Academy of Pediatrics Section on Neonatal-Perinatal Medicine (SONPM) have created a tool to help newborn care teams understand the impact of COVID-19 in their own units and more broadly in the neonatal community. The goal is to inform local and national decision-making for program evaluation and quality improvement.
The audit is open to all hospitals caring for infants regardless of VON membership. The audit will be conducted on a single day of your choice and you may choose to repeat the audit each month. Aggregate reporting will appear on the VON website.
ESPNIC is also collaborating with the PAN-COVID initiative which is the collaboration between the main pediatric/neonatal registries on the pandemics (https://pan-covid.org)