Having a child who needs to be cared for in a Neonatal Intensive Care Unit (NICU) or in a Paediatric Intensive Care Unit (PICU) is a very traumatic experience for the entire family. Immediate concerns tend to be focused on whether the sick child will survive, and whether the child will have any lasting intellectual, developmental or physical deficit. For many families the emotional trauma of constant worry is exhausting. There are additional pressures of dividing time between other children and family members at home, as well as financial and employment worries.
Staff working in NICU or PICU will endeavour to keep you updated about your child’s progress, and encourage you to assist with your child’s day to day hygiene needs.
ESPNIC recognises that families can benefit for additional information and support to help them get through this time.
Here are some weblinks to information listed by country. ESPNIC would welcome suggestions for additional weblinks . Please send to firstname.lastname@example.org.
Europe wide sites
The European Patient Forum : www.eu-patient.eu
European Foundation for the care of newborn infants : http://www.efcni.org/
PICS standards 2010
NSF for children 2004